Sunday, May 2, 2010

Random is what I do best

Here is another random post for you.

Friday was a busy day for both of my boys. Riley had an appointment at Duke with his GI specialist. It was a hellish day for he and I. While he is "ok", he has been having quite a bit of GI issues. So up to Duke we went, where they prodded and poked him (literally) and he wasn't real thrilled about that. In fact, as soon as we went in the triage room, he began crying which earned him a "CRIES" note on his paperwork. He did stand on the big boy scale (23lbs still...not gaining any weight), although he screamed while doing so, and his blood pressure registered something like 145/72 which made the machine beep like crazy. . I would be interested to know what Riley's blood pressure REALLY is, but I am positive we haven't gotten an accurate reading on his since he was very very very very VERY young, because I can remember him crying, even while in the NICU during the BP reading. After meeting with the doctor,and getting a little frustrated with how that was going, Riley and I got to hang around, for him to receive yet ANOTHER contrast enema. At least it wasn't with that nasty barium this time. We walked over to Duke Gardens for a few minutes while waiting, and had a little picnic lunch and I tried to get some pictures of him, but he apparently felt violated, and wouldn't smile. Then we were called to go back for his test. This one was so different than all the others. He has always had a stump of a large intestine, with a nice, shiny little clip at the end, that glowed on the screen, and indicated that the dye had traveled all the way to the end. Well now, he is reconnected, and we needed that dye to travel from his bottom, all the way up to spill into his small intestine a little ways, so we could see that he had NO strictures whatsoever, even at his anastamosis site. But he is missing his right colon, including his ileocecal valve and it all kind of looked the same, but FINALLY, after tilting him head down, and face down, with fluid running off the table, down my legs, onto the floor into a big puddle, we could see the change from large to small intestine. But wow, were Riley and I both a big mess! But, he has NO strictures,which was fantastic (that would have meant more surgery), so we could feel relieved that his issues were strictly diet and GI function related. Although still having to deal with problems related to that, it isn't a surgical problem. So, we press on, and hope we can find a happy medium somewhere.


DUCK! Riley yelled when we saw these ducks and geese

No smiles today

"beebee duck"




Meanwhile, Travis was at school, pretending to be Michael Jordan for the day. The entire 2nd grade had a big project called Living Wax museum to do. They had to choose a famous person, write a paper on them, and memorize a short speech. Then, they had to dress up like their person, and stand around in the multipurpose room, until someone pressed their "button" (their outstretched hand). Then, they would come to life, and state their rehearsed speech about themselves, before turning back into a mannequin to wait for the next person. Over a hundred people passed by Travis!! His teacher said he did fantastic. I sure wish I had been there though. :(



Bubbles...one of Riley's current favorite things. But he's become very independent and insists on doing it himself.

And then this happens

He totally doesn't care though

Totally doesn't care that his pants are now dripping wet with bubble liquid


All dry now!


Country boys



3 comments:

Anonymous said...

Your boys may have both had busy days last Friday, but I bet I know one thing...you are so very proud of them both. Hoping you can find a happy medium for Riley and his GI issues. I know that Travis did a fine job of pretending to be Michael Jordan. Love, Pauline

Anonymous said...

Your boys may have both had busy days last Friday, but I bet I know one thing...you are so very proud of them both. Hoping you can find a happy medium for Riley and his GI issues. I know that Travis did a fine job of pretending to be Michael Jordan. Love, Pauline

Anonymous said...

Love all the pictures of Riley and Travis. I bet Travis did so good being Michael Jordan. Good for him!!! I love the bubble ones of Riley. That's so boy, not even caring that he's wet! :) Thinking of you all. Love, Debbie and Gary

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