First, the good news...Riley's weight check today was 11lbs8oz!!! Holy cow! he's actually (finally) gaining weight! Not exactly a chunk roll yet, but getting some good old baby fat on him now it seems. :o)
In other news....his ostomy is keeping me up at night. Sometimes LITERALLY!! We have been having issues with his bag (ok technically, his wafer for those of you in the know) leaking, sometimes 3x a day, which means 3 bag changes a day, and one of those ALWAYS seems to come around 3-4am. UGH But even more bothersome than that, is when he has a leak, what happens is it leaks under the wafer (this is the part that actually sticks to his skin) and that can happen for any amount of time before it actually leaks out from under the wafer and makes itself known via a leak we can see/feel (yuck). This leaking irritates his skin, which then means we have to try and correct his skin breakdown all the while the bag is leaking more and irritating it more. We are currently in the process of trying different bags, but I am at the point that I am ready to pull my hair out about them. I just wish that someone could say "this bag is the best for him" and that be that. But there is no exact science to this. It's trial and error, with error rearing it's ugly head either a) in the middle of the night or b) right when we are trying to walk out the door somewhere or go to bed, something like that. NEVER in a casual, nothing going on moment. and seeing his skin have issues just breaks my heart. So I'm hoping we gain some ground on the skin issues and leaking soon. I know some of you reading this have been there/done that before us, so ANY advice is welcomed!
NO MORE BAG CHANGES!!!!!
Helping mommy blog and check out the new ostomy supplies that came today