Friday, January 30, 2009

On the road again...

We are headed home after 2 busy days up at Duke. Yesterday's appointment with GI doctor went well and was very informative. We will see him again in a few weeks.

We went out to eat with Scott,Michelle and Jason last night and had a good time.

Today, was follow-up with the surgeon. He said as long as Riley is doing well, the longer we postpone surgery the better. He said basically, see you in a YEAR!! Riley is doing so well, he prefers NOT to bring him down in a few months, but rather let him grow bigger and more importantly, stronger and then reconnect him. This was very surprising news,and any change in Rileys health could change that plan but it pleased us tremendously. We were not looking forward to another hospitilization so soon. And once again, we got a haunting reminder of just how lucky we are when he said there were several times when he didn't think Riley would make it home, much less be thriving.

After all that, we walked over to the ICN for a visit. We saw our friends,the Myers an found out Carter is going home today!! Another baby we know is also going home today,so it has been a day of joy. It was so nice to see a familiar name on the door of the care-by-parent room for goo reasons. This is where parents stay either to room in with their baby or because they are losing a baby. Our name was on that door nearly 4 months ago because they didn't want us too far away, due to how sick Riley was. So it was a nice full-circle moment for us.
Then, we stepped to the window to let the unit clerk know Riley was there for a visit. When that happens, they announce over the loud speaker that the baby is there for a visit anf the people working who know the baby come out and visit. We've heard them do this many many times since Riley was born, and I often wondered if he'd make it to having his name called out. So when Patrick picked up the phone and I heard all the speakers sound out "Riley Souza is here for a visit", it was a sweet moment. He laughed and coo'd at all who came out. His awesome peimary nurse Brigit,who has been with him from day 1 up at Duke was there and she cried and cried over him. Tears of happiness over how far he's come since that first day.
Once all this was over,we went to the bookstore to get a gift for Travis,and then back to the parking deck to leave and head home. This time,with Riley riding,not in a big blue truck in front of us but snug as a bug in his carseat in our van.

7 comments:

Anonymous said...

So happy to hear the good news!! He looks soo cute there in his carseat too!!

Love, Amy

Anonymous said...

WONDERFUL, and HAPPY news all around!!! I got chills reading about them announcing Riley's name over the loud speaker. What a wonderful moment for all of you! Seeing Riley so happy and doing so well, must have been so emotional for Brigit. I'm so happy that little Carter is finally going home also, he's another cutey! Now his parents can enjoy the same happiness that you and Jay have experienced. So glad you guys got to spend some time with Michelle, Scott, and Jason. I know Michelle was happy to get her hands on Riley again!! It sounds like your trip was a full, but pleasant one. The news from the surgeon was especially great!!! Here's to many more happy and healthy days for all of you. Riley looks so content sleeping in his car seat. God Bless all, and have a good weekend with your boys!!
Love and Hugs, Dale

Cindy said...

Oh Lindsey, such nice news to read. Glad to hear the good news about postponing surgery. Things are looking up dare I say. Now we need more pics of Travis and Riley playing! Take Care..

Anonymous said...

Lindsey and Jay, What wonderful news...so happy for you all and especially for baby Riley. Looking forward to many days of being able to cuddle Riley and spoil Travis! Ha! Happy Moments, Thank God. Hugs, Pauline

Anonymous said...

I am so happy that you received such good news on Riley's visit. What a blessing to hear Riley's name on the speaker when he was there for a visit, a blessing from God. Riley is such a sweet baby and I can't wait to see him again. Take care, Debbie and Gary

Anonymous said...

I'm glad Riley is feeling better and back at home. I put Baby Carter on the prayer list as well. Now he has about 3000 praying for him also. I read her blog and it sounds like she has that mother instinct on what to do and when to do it. GREAT job!!!
Thinking and praying for you daily.
Barbara

Fer said...

Great news!!!!!!!

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