cause I really am not sure what is going on right now and I'm in a pretty rotten mood about it.
First of all, Riley is currently OK. So don't let what I said above scare you. BUT...last night, his belly girth shot back up and he seemed in pain so they gave morphine, when he had gone 2 days without a morphine need prior to this. They ordered an xray as a precaution and it showed nothing alarming.
today, his morning blood work shows that his white cell count is continuing to creep upward, which indicates infection. He's on THREE strong antibiotics currently. So more blood and urine cultures. They want to bring back the antiobiotic Miropenum that he had when he was first sick with NEC. It's another of the real big gun antibiotics. In order to prescribe it, Infection Disease has to be involved. So had to wait ALL DAY for them to come around. They also ordered an ultrasound of his abdomen which didn't shown anything alarming. Right now, they are saying if the Mirapenum doesn't improve things by tomorrow, they will do a CAT scan. Meanwhile, I am saying JUST DO THE CAT SCAN!!! don't wait and let something potentially harmful linger and not know it's there. We'll see what happens, as I'm here and he's there.
So that is why no previous update today. I was hoping to know the answers to all of this but...nothing so far. In case I haven't expressed it enough....i HATE this. I hate it. I hate not being there. I hate hearing Travis cry on the phone to Jay at night that he misses him. I hate knowing Riley continues to have infection and it just seems like he is never going to get well and come HOME.
5 comments:
Dear Lindsey, I am so sorry that baby Riley is not feeling so good today. And, even more sadder that you, Jay and Travis and baby Riley are having these so awful days of sickness for baby Riley and the awful waiting and having to be absent one from the other. Keeping you in my prayers. I ask you dear God to heal baby Riley. And, give Lindsey healing and peace within. Hugs to you all, Pauline
Lindsey, Stay strong, i know it is hard but those little boys need you to continue to be that way for them. your level head and constance knowledge has enabled Riley to come a long ways, Even though we cannot Imagined your feelings please know you have support, our prayers are with you, Doris
Dear Lindsey, sweet girl, It has to be the most helpless feeling, when you want them to do something for your baby (which I agree with you), and they take their own sweet time to decide. What difference would it make, to do the CAT scan now. Then they would know if they are dealing with something else before AM. Authority, don't you just love it!!
You are all in my prayers, and I sincerely hope Riley's pain improves, so he can get some rest to stay strong. Give Travis hugs, as I'm sure he feels your frustration also. Stay strong and positive. Riley will keep fighting!
Blessings to all, Dale
Lindsey ,
I can't imagine the frustration you must be feeling the separation , the unknowing , etc... Riley is an amazing little boy and fighter and you have so many people praying for him and family , You all will get through this . Stay strong .
Janna Watson
Lindsey, I can't begin to imagine how you feel. I know it's hard wanting to be in two places at the same time. I am so sorry to hear that Riley is still not feeling good. Bless his heart. We continue to pray to God to heal this precious little child so that one day, all of you may be at home together. Hang in there, Debbie and Gary
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