Monday, February 8, 2010

Ready for today to end, but not for tomorrow to come

Well, we have almost made it through today.

Riley had his contrast test this morning. It showed a couple of potentially troubling areas in his large intestine. But these tests aren't conclusive by themselves, unless there is a complete blockage. So, the surgeons will just have to check these spots out to know for sure if they are bad or not. If they are, then Riley will lose some intestine. If he has to remove those spots, he may chose to leave his ostomy in place for now, until those spots can heal. So...we have no idea what is going to happen tomorrow, other than he is scheduled for surgery at 7:30am, and we will have to arrive there at 6am. Of course an emergency could bump him to later like last time, we'll just have to see what happens.

Today, he has been restricted to clear liquids. Overall he has done great dealing with not being given food and milk. However for the majority of the day, he didn't consume much. Then this afternoon, he did a little, and promptly vomited. He begged for more, gave him some broth, which he gobbled down, and then he vomited that up and his bag leaked all at the same time. It was a fun few hours. Not sure what was causing the vomiting, but he seems better now. After effect from the constrast study maybe?? Not sure, but he's eat a couple jello cups and more broth since his last vomit and has done fine (so far).

He was in a pretty poor mood after his test this morning, up until about 3pm. But then, other than the vomiting, he was typical Riley Bear. Fun and playful and happy, and handling no food much better than we are! We have eat (once) today. Jay went to the cafeteria at Duke while Riley and I waited for his pre-op appointment (which they took us an HOUR early for, amazing) and then they browsed around in Target while I ate alone in the van. Dinner it seems will have to wait until Riley is asleep and right now he's going strong playing with his new Little People castle set from Target today. He deserved a treat right?

So...early morning tomorrow. Thanks so much for all the encouraging comments and emails. They have been very uplifting.

Eating broth like a good boy

Oh one plus today...they didn't have to stick him for lab work. They will draw what they need once he's asleep tomorrow. Hooray for him.


Anonymous said...

Riley is such a trooper. Bless his heart!! I am glad he is feeling better now. Wishing you the best tomorrow and saying our prayers for all of you. Love, Debbie and Gary

Jenny in Chapel Hill said...

You guys are awesome and handling it all so well. Whatever tomorrow brings you, I know you can deal with it. Neil and Evan are cheering for Riley. Evan says he hopes this surgery helps Riley get his poopies out like it did for him, 'and then the scar came.'

Good luck to all and thanks for twittering to keep us all updated.

Anonymous said...

Thanks so much Lindsey for all updates today. Bless Riley's little heart, he is such a fighter. And, you and Jay are two very caring parents. Keeping you all in my thoughts and prayers. Hugs, Pauline

Jenni said...

Praying for you guys tomorrow! I'll be up at Duke for the radiothon on Wednesday morning and would love to stop by and say hello, bring you ANYTHING you need, etc. Please let me know or just tell Michelle to tell me!!

Jenni Jones

brad.kellie.babyc.lucy said...

I forgot to ask how Travis is handling this? I guess he stayed home? Please give him a big hug from us.

Anonymous said...

thinking of you all. praying that all goes well with the surgery..
your once upon a time nurse


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