Today, Riley is eating 40cc by bottle every 4 hours. His tube feeds are infusing 80cc over 1 hour now. he's tolerating every bit of it like the champ that he is. Tomorrow's plan is to tube feed over 30 minutes. If he can do that....that means we are to the point that Riley is keeping HIMSELF in the hospital so to speak. Once he tolerates that tomorrow, he then has to show HE can eat the 120cc by mouth (remember 40cc by bottle today + 80cc by tube) and then it's go home time. Well. Ok. back up. Got to get the broviac out first (should be this week), they actually disconnected the line from it today. That is the FIRST time since Riley was born, that he does not have some sort of IV line hooked up and RUNNING fluids of some nature to him. Amazing isn't it?? SO. Here is the go-home list:
Eat the 120cc by bottle - working on it
Broviac out - sometime this week??
Carseat test - ??
Us watch the videos - anytime we feel like watching videos for an hour while visiting Riley
Hearing screen - this week? dunno yet
Circumcision - soon (poor baby)
Rooming in - ??
that's it folks! I am so anxious for them to get that Broviac out of them I can't stand it. I'll probably be the doctor's worst nightmare until that thing is gone. It's an infection risk, it's no longer needed, and all it can do at this point is get him sick which will keep him in there. Question #1 on my list tomorrow is "when is the Broviac being removed".
The doctor's guesstimate on when he thinks Riley will go home New Years day...when Riley couldn't suck on a bottle for nothing, was 3 weeks. In 4 days, we are bottling 1/3 of what he needs, no iv fluids and full milk feeds. These are things he thought would take 2 weeks to get to. I'm very interested to hear the guesstimate tomorrow.