Few more details

My short posts are appparently scaring people. First of all...Riley is "ok". He looks rough. I mean for one...he's HUGE. His "dry weight" as the call it, meaning his true weight, no puffiness, is about 8lbs11oz. Toniht he weighed 10lbs9oz. He's retaining fluid because that is just the way sepsis works basically. His blood vessels leak fluid and he bloats. They did give lasixs today and he will get every 12 hours. He actually is dehydrated. All the fluid he is retaining and they are pushing through him, hardly any of it is making out of him. They cath'ed him this morning to get a urine culture and they had to leave it in for about 2 hours to get a teeny amount of urine for the culture. It was so concentrated, it actually had sediment in it. His labs aren't showing any issues with kidneys though thankfully.
He has not run any more fevers and he gets milk still,although he's not real interested in it because all the fluid retention also has him congested (just nasal..lungs are clear as of right now) so its hard for him to drink and breathe. He's seems uncomfortable which is understandable from the severity of the bloat. He's getting tylenol for that.
So like I said. He's "ok". He is sick of course and looks rough and bloated, but his heartrate and breathing are ok. His labs aren't THAT bad (theyve been much MUCH worse before). He's uncomfortable but doesn't seem to be in real pain. He is happiest lying on my chest.
My short posts have mainly been due to my 1)seething with anger all day and 2)my absolute utter despair that I will have to leave him tomorrow and go back home (unless something about his condition changes). Jay will be staying so he won't be alone but as every mother reading this will understand...I'm his mommy. As far as the anger,I'm too lazy to type it all on a little keyboard but the short of it is there were some serious ego issues here that arose as well as a soctor seem to have forgotten that SHE may be providing medical care to him but he is MY baby. She won't forget it again.;o) I relented to allow them to try one and ONLY one time to place another PICC.I am not going to have him stuck another 5 or 6 times when the decision was already made to get a broviac. If that fails,he will get a broviac as originally planned. They won't try until at least Monday. We aren't mediacal professionals. The director of neonatology here (yes..I really caused an uproar here today) will be speaking to the surgery team about their specific plans for his next bowel surgery,as they may can do broviac and bowel surg at the same time.
So it was a long day. I'm upset about leaving tomorrow and I have uttered the phrase "but I'm his mommy" about 80 times today in tears. We are angry that we are up here because what they are doing and plan on doing...could have been done at New Hanover. But they didn't communicate that to our docs there. I have called New Hanover for advice aand guidance as I just want what is best for him and have been told 2 completely differing things and didn't know what direction to go in. Lots of his former nurses have come by to see him and the nurse he had today was a really good suppport.
Anyway, I hope that helps clarify things a little. Oh and have I mentioned lately how ready I am for him to come home?