Tuesday, November 25, 2008

feels like we just went backwards

So this entire past 6 weeks, we have been so focused on this surgery and the outcome of it, that RECOVERY from this surgery was never really focused on much.

Wow, it feels like we've stepped back in time as we sit with him tonight. Looking at the vent tube in his mouth and hearing the snoring sound he makes with it in his airway. Replogle tubes sucking out stomach boogers. Replogle tubes clogging up and not doing their job. Little eyes WIDE with pain and silent winces and cries, only to be replaced with one eye that is barely peeking open and you aren't sure if he's awake or not. Alarms going off.(his alarms NEVER go off any more). Changing Oxygen levels on the ventilator to help prevent things happening that make alarms go off. He lays perfectly still for heel sticks. Most likely cause it hurts too badly to move.

The changed the IV fluids he was getting to one with a lower concentration of dextrose to help his sugar level. An hour later it was still high, 295. If 300 or more at his next assessment, they'll give him some insulin. He keeps gagging on his vent tube, and that just looks scary, plus brings up some very sad memories for me. The sooner that thing can be gone, the better, but as long as he keeps de-sat-ing, the vent will stay.

5 comments:

Anonymous said...

I'm sorry you are having a tough night. It must be so hard to see Riley in pain again. It just breaks my heart to think of him like this, but I know that it will be for the best. He is strong and such a fighter. Hopefully this will pass quickly and you will be seeing those smiles again. Try and get some rest--you all need your strength right now.

Anonymous said...

Oh Lindsey, how my heart breaks for you, watching your precious baby in pain, and not being able to help him. I'm crying with you.
I know you just want to hold him and make things better. No parent deserves to go through this, but you know it is necessary to get him well again. The first few days are always the hardest, (and the longest). Riley has a remarkable will to overcome his obstacles, and he will keep fighting to get well soon. May God be with you all, as you get through the next few days. Hoping Riley will be able to get relief from his pain, and rest better soon. I know you will not be able to sleep well, but I hope you can at least rest a bit, to keep up your strength. Do it for Riley!
Love and Hugs, Dale

Anonymous said...

My heart is aching for baby Riley, you and Jay. It is morning now...hope you did get some rest. Praying Riley will have a better day today with less pain. Fight hard sweet one. God Bless, Pauline

Anonymous said...

So sorry to hear the nightmare has returned, hoping to God he heals quickly and is smiling again. Tomorrow we will say a special prayer around the table and be most thankful that Riley is such a fighter and still here with us. Much love to you,Jay,Travis and Riley...take care all and keep the faith.

Anonymous said...

I am so sad that you have to re-live such sad memories. It will be over soon. Riley is going to continue to fight. I know as parents you want to make it all better for him. God is holding him in his hands and comforting RIley, when you cannot. I hope he was able to get some rest and the both of you as well. Please keep your strength up. Love, Debbie and Gary

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