The surgeons finally came by to talk to us. They basically say that the Neonatologist and the Radiologist do not know what they are talking about, that what the ultrasound shows in Riley's abdomen is NOT an abscess, but just lots of fluid, that his body will reabsorb on it's on over time. I probably should be jumping for joy over the no surgery part, but I just feel conflicted that it is the right decision. When you have 2 different doctors tell you two different things....how do you know which is right?
His room was very loud today. Between some outside drilling, and all the alarms in the room, I'm feeling very overstimulated/nerves shot. I decided to come back to the room early because I just couldn't take the noise anymore.
I will be talking to the neonatologist tomorrow to find out his opinion of what surgeons decided.
I've gotten lots of comments/emails today on MY health. I'm doing 'ok'. I wouldn't recommend this level of activity to anyone so soon after a c-section, but I'm making it. That's the most I can say about me. I have a high pain tolerance, and it's probably a good thing. :o)
In other news....the nurses had to put a preemie hat on Riley's right hand today. He kept trying to yank out his ventilator tube. He promptly wiggles his hand out of the hat and continues about his business. I brought booties and little non-scratch mitts back for him after dinner tonight and they were so happy to see the little mitts. As for myself, I enjoyed the booties. His legs are so skinny, and the booties just made them look even skinnier.
Travis seems to be living it up at Mema and Granddaddy's house. He was given money for the book fair and came home with 3 books, he rides his 4 wheeler every afternoon, gets ICEE's on the way home from school and went shoe shopping tonight and came away with a new shirt also! Tonight when I talked to him, he wanted to know if I was with Riley and I told him I was in the hallway near Riley's room. He asked me to tell Riley that he said to get better soon :o) What a sweet boy. And before school let out today, Travis' teacher gathered the students in a circle and they all said a prayer for baby Riley. Hope this boy realizes how cared about he is one day!
so that is all for tonight.
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4 comments:
Lindsey, rest well tonight, I think you need it. I will be very interested in hearing what the neonatologist's opinion is of baby Riley not having surgery. Like you, I can't help but question it, and hope that the surgeons have made the right decision. Take care, Love, Pauline
We do not know each other, but we are good friends with Jenn Stikeleather. You and your family are in our prayers. Stay Strong in your Spirit and in your Faith. You and your little man will pull through this. May God put his hand on your shoulder and give you peace and comfort. Trust in his love and grace. Many Blessings and Prayers are sent your way!! Brian Wray
I know it is frustrating to get different diagnosis. We had that happen with the girls when they were very sick. One doctor wanted to try one thing, but another who had looked at the more recent research said we should wait. We also had second opinions on Abby's ROP. That's why they have teams of doctors and consult with each other within their specialties.
I think it is always good to get more information and make sure you understand why the surgeon feels how he does and why the other docs thought what they did. Never be afraid to ask for a second or even third opinion.
It was really nice to meet you Tuesday. Hang in there, and please call if you need anything.
Johelen
Hi Lindsey, i wanted you know you are in our thoughts as prayers through this journey you are going through, sometimes we dont understand the why of things but knowing God will see you through will give you the strength you need. you and Jay take care of yourself. db
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